Tuesday, February 10, 2015


I can't even imagine how boring it is to sit in a wheelchair all day long, all the while unable to verbally articulate what you may want, as in: hungry, tired, bored, can you take me here or there, I'm cold - can I have a blanket, and so on...  I think Darlene and I are pretty good at being able to read Laura's expressions, decipher her quite whispers, and read her lips.  We match these observations up with the time of day to get a pretty good idea of what she needs, wants, or would enjoy.

Thankfully, Laura loves breakfast time and always appreciates the chocolate chip pancakes.  Usually after the 1 hour required to feed her I stand her for 20 minutes to alleviate the pressure on her backside.

Past weekends we've gone out to movies or lunches; this past weekend we mixed in small events like reading her college textbook on "Educational Psychology", reading to her the latest Jody Picoult book, sitting together and looking out the back windows at the birds. Since the temperatures were in the low 50's on Sunday, we all went to church together and picked up lunch at Panera afterwards.

At a couple points, she was excessively uncomfortable so we would take an afternoon nap.  Another time, we took advantage of a 20 minute bike ride (image top left) on her mobile programmable pedal machine that can be rolled up to her chair.

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